February Health Update

Unfortunately I am back in the hospital. I checked in on February 17^th, which makes it around a month since I was in last. I can’t remember a time when I’ve had such a short break between rounds with IV Antibiotics, but I am hopeful this will be the round that kicks my lungs back into shape and gets them working right again.

I had e-mailed my Doctor Monday morning expressing my concern over an extreme shortness of breath, and he called me in for an appointment the next day, and admitted into the hospital that evening.

My oxygen stats were holding around 92% resting, which made my doctor nervous.  My PFT’s were also down 4% from January to 30%. It’s really frustrating for the numbers to be so low, this time last year my PFT’s were in the mid to high 40’s and my oxygen levels were close to 100%. It’s hard to think that all the work I did training for the runs I have done haven’t had any benefit to my overall lung heath. 

I feel like I am running out of things to do or try to get better. At this point I am just really hoping that the Kalydeco for the Double delta mutation will be available soon. I really am hoping that will be a game changer in my life. 

I am going to keep working hard throughout this year to improve my lung function so I can have the option to pursue a long standing dream of mine that I thought I lost.

It's not going to be easy, but it's going to be worth it.

UPDATE: I was able to make it home on Monday February 23rd. I will be on home IV antibiotics until the 3rd of March at least. It feels good to be out of the hospital. exhausting though! I didn't realize how much I didn't move while I was in there.